PAST EVENTS 活動花絮

小而同罕有骨骼疾病基金會會長Serene於2014年1月20日出席由醫管 局及護理深造學院舉辦的「臨床遺傳科及遺傳輔導」課程，以「從病人父母的角度 看罕見疾病」為題分享經驗。除了分享照顧三歲患軟骨發育不全症兒子的經驗，Serene亦向在職護士介紹小而同罕有骨骼疾病基金會的使命和工作。 Serene, Chairperson of LPHK, spoke at the Commissioned Programme "Clinical Genetics and Genetic Counseling for Nurses" organised by the Hospital Authority and Institute of Advanced Nursing Studies on 20 January 2014. During the seminar, Serene spoke on the topic "Rare Diseases from the Parents' Perspective". Apart from sharing her experience of taking care of her 3-year-old son with achondroplasia, she also introduced the mission and work of Little People of Hong Kong to the audience.