小而同罕有骨骼疾病基金會
Little People of Hong Kong (LPHK) 2013年12月創會 Founded in December 2013 小而同由執行委員會管理,而顧問委員會則由醫護人員及專業人士組成,所有人員均屬義工。 LPHK is a primarily all-volunteer organisation operated by an Executive Committee supported by an Advisory Board which consists of physicians and professionals.
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Our values
People with physical differences caused by rare bone diseases deserve the same rights and opportunities to live a meaningful life and become a valuable member of society.
價值觀
因患罕有骨骼疾病導致身體外貌有異於一般人的人士,應享有同等權利 和機會活出精彩人生,成為社會有價值的成員。
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Our mission
We strive to help rare bone disease patients to live an independent and fulfilling life by overcoming challenges associated with their physical disabilities. We achieve our mission through:
Establishing a support group which enhances the physical, psychological and social well-being of patient families;
Providing useful and timely medical information to patient families;Promoting social acceptance of patients by educating the public about rare bone diseases; Raising funds to provide services for patient families in order to enhance their quality of life. |
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使命
我們致力 協助患罕有骨骼疾病的人士克服身體殘障帶來的挑戰,從而幫助他們過獨立及有意義的生活。我們透過以下方式實踐使命:
建立病人支援小組,加強患者及其家人的身心健康,助他們融入社群;向患者家庭提供有用及適時的醫學資訊; 向大眾灌輸骨骼發育異常的知識,加強社會對患者的接納; 為服務患者及其家庭籌款,改善患者生活素質。 |