我們的使命 Our mission |
我們致力協 助患罕有骨骼疾 病的人士克服身體殘障帶來的挑戰,從而幫助他們過獨立及有意義的生活。我們透過以下方式實踐使命: 建立病人支援小組,加強患者及其家人身心健康,助他們融入社群; 向大眾灌輸骨骼發育異常的知識,加強社會對患者的接納; 向患者家庭提供有用及適時的醫學資訊; 為服務患者 及其家庭籌款,改善患者生活素質。 |
We strive to help rare bone disease patients to live an independent and fulfilling life by overcoming challenges associated with their physical disabilities. We achieve our mission through:
Establishing a support group which enhances the physical, psychological and social well-being of patient families;
Providing useful and timely medical information to patient families; Promoting social acceptance of patients by educating the public about rare bone diseases; Raising funds to provide services for patient families in order to enhance their quality of life. |
下載「小個子,大作為-認識罕有骨骼疾病」(中英對照)| Download "Little but not Less: Understanding Rare Bone Disorders (Chi/Eng Bilingual) © 版權屬香港大學所有 |